I have a friend in the US that I met through my blog. Not only does she have Endometriosis but she also has Lupus. I honestly have no idea how she copes! Unfortunately, at the moment, I think the answer is that she isn’t coping.
Her last laparoscopy was 2 1/2 years ago and her Endo is so bad that she’s in pain for two weeks per month. I asked her when her next surgery is scheduled and she cannot afford it. She’s blacklisted from health insurance because of her Lupus. How can anyone be expected to cope if they’re blacklisted from health insurance, they have no access to health care and they can’t hold down a job because of the pain?!? How, in the most wealthy country on the planet, can you people let this happen? How can anyone deny appropriate health care to anyone?
Anyone who knows me will know how Endometriosis can be – such severe and violent pain that it has in the past lead me to 1) giving myself third degree burns and scars on the small of my back in an effort to alleviate the pain; 2) vomit from pain; 3) being unable to walk due to shooting pains from my back down into my legs; 4) missing school, work and generally not being able to have a normal life on a regular basis due to the pain. I once described Endometriosis pain like this: have you ever had a leg cramp wake you up in the night? Endometriosis pain is like that but I get it in my lower back mostly and it’s in a place where I just can’t stretch it to alleviate the pain.
After surgery, I’m a normal woman again. Sure, I have period pain but I take a couple of paracetamol (that’s acetaminophen to you in the US) and carry on with life. Surgery is not a cure for Endometriosis but it does allow a sufferer to have a remotely normal life until the build up occurs again.
On top of this, my friend has Lupus. While I am not personally familiar with Lupus, I know that it effectively prevents her from receiving health insurance in the US. So, how on EARTH does anyone get adequate treatment once they have a chronic condition in the US? How does anyone over there justify the greed of insurance companies and drug manufacturers?? How can you people sleep at night?!?
It makes me SO ANGRY to think of the thousands of my sisters in chronic suffering are never going to be as fortunate as me.
When I talk to more fortunate Americans (who don’t have chronic conditions) they don’t want more tax; they think that health care shouldn’t be a right; they think that people with chronic conditions are lazy.
I don’t think that health care is a right. It’s a service that I pay for in my taxes – just like the fire and police service.
Why should you pay insurance premiums for something that won’t cover you as soon as you get something that’s 1) difficult to treat; 2) leaves you with chronic symptoms; 3) has no cure. Wouldn’t you prefer to pay for a service that 1) treats your illness; 2) gives you a standard fee for prescriptions; 3) treats you with dignity.