I recently saw a poster for Endometriosis UK entitled “Bloody Hell”. Finally a phrase that succinctly explains what it’s like to live with Endometriosis!
I have lived with the symptoms since I was 12. I used to vomit from the pain and all the doctors could do was give me painkillers and a pat on the head.
Since then I’ve had 3 laparoscopies (two for Endometriosis and one for PCOS) and I’m taking birth control pills – running 3 pill packs together so I don’t have periods too often.
It’s a pathetic solution if you ask me. Thinking about it, why should I suffer pain that keeps me from working – even if it is only six times a year instead of 12. Sure, fewer times a year is good but I’ve been on a monthly cycle for so long that I’m afraid it’s going to take my hormones years to get into the new rhythm. In the meantime, my cycle seems to start normally, I start to get PMT (US translation: PMS) in week 3 and I don’t stop being a real pain in the butt for about 3 weeks. Then my body seems to have decided that it’s not going to happen again and I start to feel remotely normal. Then I stop and have a period and the cycle starts all over again!
I sometimes wonder if I were bleeding from the eyes, would I get better service from doctors? If a limb dropped off just outside the doctor’s office, would I get more sympathy and a solution that helps me cope with my condition? I don’t want to go on and on about the fact that no one can see my pain and perhaps that’s why I lived with the condition for so long before I got surgery and a diagnosis.
Now, I realise that life isn’t fair and you have to take what you’re given and make the most of it BUT I will not accept that endometriosis is something that I can simply live with!