Jeanne at Jeanne’s Endo Blog has once again opened my eyes to issues that are surrounding the condition of Endometriosis. Please please please have a look at her post dated 16th February and sign the petition!
My dream is that a cure is found and that no other woman has to suffer the way I’ve done since I was 12 (I’m nearly 38 now!) and have to wait for years and years for a diagnosis. Initially I was diagnosed with “cramps” when I was 12 and told to take painkillers. The sad truth is that now I do have a proper diagnosis, the only treatment is painkillers, surgery and more recently I’ve been told to run my birth control pill packs together so that I have fewer periods. This kind of treatment is simply not good enough!
If you want to read an amazing article about living with chronic illness and maintaining a career/work please click on the article below.
This article was recommended by Jeanne in her blog and is a wonderful read.
I will confess that I’ve not told my new employer about my medical conditions, mainly because I was desperate for the job and need to be able to cover the mortgage. Sure, I’m confident that I can do the job – on the days when I’m not in pain.
I have had to learn how to communicate with doctors about the intensity of pain, the length of pain and how it effects my day-to-day life. After reading the article, I realise that it’s OK to tell my work colleagues about my condition – but I’ll probably say that I’m getting better while meaning “I’m learning to live with my condition.”
As pain affects me only at certain times in my cycle, I’ve managed so far to omit telling anyone at my new job. It wasn’t that long ago that the pain has been known to be so intense that I have been known to be sent home from work. (Which is a really big thing for me considering I rarely have time off work for any other reason! I usually only relent after kicking and screaming and saying “but I’m not contagious!”) If my pain arrives at the weekend (or indeed once I’ve been sent home) the best thing for me to do is load up on my prescription painkillers and make a boiling hot hot-water bottle and curl up on the couch with a movie or just go to bed.
Unfortunately, my condition is such that I know it will eventually get worse and will be so bad that I’ll need surgery again. (I’ve had two surgeries for it already!) When I’m suffering with the pain, I can’t cope. Once I’ve had enough painkillers to cope with the pain, I can’t cope because I’m really doped up. Either way I’m completely incapacitated and unfit for work.
Should I tell the gang at my new work? Would it be worth doing considering I’m not planning to have a period as often as before? Isn’t it awful that anyone should have to think like this and worry about keeping a job!
I’ll try and remain positive and ponder my options… Does anyone have any suggestions?